joi, 29 ianuarie 2009

vreau sa vorbesc cu cei care au ihtioza

Vreau sa stiu si eu daca exita un fel de messenger nu forum unde pot vorbi cei care
au ihtioza. Multumesc.
dumi_v87@yahoo.com

7 comentarii:

Anonim spunea...

Buna ziua.. am 17 ani..sunt din Timisoara iar de la varsta de 5-6 ani... am ihtioza...nu am o forma atat de grava precum arata unele poze de pe google..doar de la genunchi in jos.. si foarte putin pe burta si spate.. dar pielea imi este uscata.. ma dau zilnic cu crema.. si folosesc doar un anumit gel de dush..de la bioderma.. iar crema este facuta in farmacie... am fost la mare... o saptamana.. acolo nu am avut nici o problema... nici nu era nevoie sa ma dau cu crema.. pielea imi era foarte catifelata si moale... cand am ajuns inapoi acasa si am facut dus.. instantaneu pielea mi s'a inasprit la loc...eu folosesc in continuare acest tratament.. dar vreau sa stiu ce mai pot folosii... altceva... Va multumesc

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LUCIA spunea...

si eu sufar de aceasta boala de la nastere .am 45 de ani si mai am o sora cu aceeasi afectiune,locuiesc in cluj boala e incurabila ,la mine e pe tot corpul/folosesc ptr hidratarea pielii creme cu galbenele si vaselina simpla nu avem ce face trebuie sa fim optimisti ,putem duce o viata normala eu fiind casatorita dar sincer evit sa am copii/multa sanatate

































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